Publications

Resource Guide for Families

Knowing where to access information, services or support can play a vital role in optimising day-to-day quality of life. The Resource Guide for Families outlines services that may be of assistance and how you may access them. This guide has been developed to help families who have had difficulty locating services and resources when the need arises.

Download: Resource guide for families (PDF)

Directory of Genetic Support Groups and Community Support Organisations in Western Australia

The purpose of the Directory is to provide genetic support information to health professionals, individuals and Genetic Support Groups. The aim of the Directory is to assist with referral for individuals and families with either a known or newly diagnosed genetic condition or predisposition to these Genetic Support Groups.

Rare Diseases

Starting a Support Group

Download: Resources for support groups (PDF)

Latest Gene Advocate Newsletter

Featured Articles:  

Member Profile

Familial Hypercholesterolaemia Family Support Group WA 

Download: Gene Advocate Newsletter Issue 76 2014

Gene Advocate Newsletters 2013

Gene Advocate Newsletters 2011